Welcome to the Kidney Cancer
Konnection site.
A site for all those seeking information about Kidney Cancer. The site is a
patient and caregiver initiative, who keep it updated and will be added to as
time goes along and we welcome any input from our visitors, making it a continual
work in progress. Please note that the information on this site is only to be
used as a guide and that any symptoms should be discussed with your medical
team. All we can do is share our experiences and opinions and suggest things
that people can look into and ask their medical team about. Please send you
input to info@kidneycancerkonnection.com
Check out our "Warriors"
page, where you can submit your/your loved ones' personal story and photo to
warriors@kidneycancerkonnection.com.
Now
What?
You have just been told you have kidney cancer.
After the initial shock wears off you will have some serious questions: What
do I do now? What is kidney cancer? How is it treated? Am I going to die from
this? Oh My God – Now What?
Take a moment and just breathe – slowly inhale
through your nose and exhale through your mouth – do this a few times
– regroup your thoughts. You are not alone. You have just joined the ranks
of tens of thousands of people living with kidney cancer in the United States.
That’s right – LIVING – and this is the key word you need
to focus on right now.
- The first step is to arm yourself with as much
information about kidney cancer as possible. Knowledge IS Power - the more
you know – the better prepared you will be to deal with your cancer.
Make no mistake – you are preparing to declare war on your cancer. We
are here to give you the munitions you need to fight the battle. Check out
our links page for some helpful sites.
Remember, we
would love to hear from you.
Feel free to email your story and
a photo to warriors@kidneycancerkonnection.com
and we will be happy to add it on our "Warriors" page.
Please check out Pray
4 Tay.
Tay was a 13 year old who in August of 2009, was diagnosed with Papillary Renal
Cell Carcinoma. On Tuesday, December 29th, her family was informed that her
latest scans had shown 2 mets in her right lung, for which she had surgery.
She is presently in Washington at the NCI, where she is undergoing a barrage
of tests, as the cancer is back again, with the right lung showed 5-6 very tiny
tumours and the left lung 2. If you are on Facebook, you can friend her and
her Mum ... Taylor
Filorimo and Maria
Filorimo
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Thank
you Karen E for this description of how Kidney Cancer has affected you.
Know
life will never be as it was, it is now a 'new normal'.
Intensely
aware of how I feel physically, mentally and emotionally each day.
Different
outlook and increased patience toward myself and others.
New friends
who can share, support and really understand.
Extensive
(and exhausting) new knowledge of all things carcinoma
Yearning
for some days when cancer thoughts don't dominate my mind.
Completely
overwhelmed.
Anger, anxiety,
then acceptance.
Never-ending
scanxiety.
Closeness,
caring and love from/to family and friends is more easily expressed and
received.
Ensuring
self-care is a top priority.
Resting,
relaxing and remembering 'Life is good'. |
Voice
for Caregivers
I am a voice,
though only small for all who hold the reins
As they watch their loved ones battle with the stresses and the strains
Of a plague that lends no favours to gender or to race
That silently invades the sacred body without grace.
"Cancer" is that dreaded curse that changes lives forever
For not only the affected, but also their caregiver.
I am a voice,
who through my words will bless you with some hope
For caregivers putting lives on hold and thinking they can't cope
Please take a moment now as I relay what I've been through
And at the end you'll soon find out that it's not only you
Who feels your life is overwhelmed, altered and distressed
As emotions overtake you through a phase of utmost tests.
I am a voice,
to tell you, I know exactly how you feel
The constant aching in your heart is oh, so very real.
Sure, you've heard of others out there,
Maybe friends who've walked this path
But now it's you and this time you directly feel it'
... ©Debbie
Andrews ... My
Husbands' Cancer
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My
Guestbook
Please feel free to sign the Guest Book
The
winner of our competiton to celebrate march being Kidney Cancer Awareness month
is Sonya Dalton-Salahuddin.
Congratulations Sonya. You can read Sonyas' story on page 2 of the Wall of Warriors.
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We respect the privacy of
our RCC family and will not share personal details/emails with anyone, without
permission from the owner.
Copyright 
2010 Kidney Cancer Konnection. All Rights
Reserved
Web site
developed and built by Jeff Newman. Content added by my late wife Chrissy Newman.
Chrissy's
journey
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